Evening update (Saturday 01/17)

Max had another good day today. He and nurse R. made me a heart-shaped card for my birthday; it also had a little bottle of nail polish in gift bag. (Max and nurse R. chose "I'm Not Really A Waitress", one of mommy's favorite colors now that she's safely out of graduate school and unlikely to be waitress.)

We spent the afternoon together, playing/exercising with a little nap worked in. His sats continue to be very high 90s or even 100 with few or no desats, and his respiratory rate is good. When he's awake he is getting better state control, that is, not freaking out at every movement. As you can see from the recent posts, we now even have video evidence of this.

Max's head circumference has now been stable at 39 cm for a few days. His weight tonight is 3700 grams, or a little over 8 lbs.

Tomorrow is a big day for Max. His feedings will start being compressed so that he is fed through the NG tube for 2 hours, then gets an hour break, then the 2-1 cycle repeats. We'll start to see whether his respiratory system can handle whatever reflux his body throws at it. We're all pulling for you, Max. Good luck.