Max's GI situation got a lot worse today. As of this morning he hadn't stooled despite the addition of prune juice to his diet and a suppository. In addition, he showed other symptoms related to his GI distress: swelling of his lower extremities and groin, and increased respiratory distress (including a minute-long apnea/brady this morning).
The docs gave him a blood transfusion, hit him with some Lasix and then planned to give him another blood transfusion. (No word on whether they used the famous BUN + Age = Lasix dose formula.) They've increased his respiratory support (higher flow through his canula, higher-than-room-air O2 percentage), and they've tilted his bed more, raising his head.
They're consulting with the surgical team on whether to do a biopsy for Hirschsprung's disease. At this point they don't think it's NEC, but they'd rather be safe than sorry.
No increase in head circ; they'll tap him only if they need to do so as part of a sepsis workup.
skip to main |
skip to sidebar
Max was born in October 2008 at Georgetown University Hospital. After more than four months at GUH, Max moved to the HSC Pediatric Center in March 2009. He came home six months after he was born, in April 2009.
Max on Thanksgiving
Max on Good Friday
Max at Home
Tummy Time
A TUBE-FREE MORNING
Start Here: A list of posts with background information
- We're home! (leaving the hospital with Max)
- The hospital at home (what it's like to care for Max at home)
- Max in action (see Max do his tricks)
- How is Max? (update April 2009)
Most recent photos of Max
Blog Archive
-
▼
2008
(100)
-
▼
December
(69)
- Evening update (Wednesday 12/31)
- Evening update (Tuesday 12/30)
- Morning update (Tuesday 12/30)
- Max's first report card (Monday 12/29)
- Evening Update (Sunday 12/28)
- Playing Possum
- Evening update (Saturday 12/27)
- Max in the step-down NICU
- Late night update (Friday 12/26)
- Video of Max at the NIC unit on Christmas Day
- Max in his NICU crib
- Morning update (Thursday 12/25)
- Midday update (Wednesday 12/24)
- Morning update (Wednesday 12/24)
- Evening update (Tuesday 12/23)
- How the NICU has changed us
- Late night update (Monday 12/22)
- Evening update (Monday 12/22)
- Midday update (Monday 12/22)
- Afternoon update (Sunday 12/21)
- Evening update (Saturday 12/20)
- Evening Update (Friday 12/19)
- Evening Update (Thursday 12/18)
- Morning update (Thursday 12/18)
- Evening update (Wednesday 12/17)
- Late afternoon update (Wednesday 12/17)
- Mid-morning update (Wednesday 12/17)
- Morning update (Wednesday 12/17)
- Evening update (Tuesday 12/16)
- Afternoon update (Tuesday 12/16)
- Midday update (Tuesday 12/16)
- Bonus late-night post (12/15)
- Evening Update (Monday 12/15)
- Morning update (12/15)
- Evening update (Sunday 12/14)
- Max's new home, explained
- Afternoon update (Sunday 12/14)
- Evening update (Saturday 12/13)
- Morning update (Saturday 12/13)
- Guide to Max's new environment
- Late night update (Friday 12/12)
- What is the NICU like?
- P.S. (Thursday 12/11)
- Evening update (Thursday 12/11)
- Midday update (Thursday 12/11)
- Evening update (Wednesday 12/10)
- Midday update (Wednesday 12/10)
- Bonus head circumference post
- Evening update (Tuesday 12/9)
- Bonus update (Tuesday 12/9)
- Morning update (Tuesday 12/9)
- Phrenology
- Evening Update (Monday 12/8)
- Morning update (Monday 12/8)
- Evening update (Sunday, 12/7)
- Evening update (Saturday 12/6)
- Morning update (Saturday 12/6)
- Evening update (Friday 12/5)
- Midday update (Friday 12/5)
- Morning update (12/5)
- Evening update (Thursday, 12/4)
- How is Max?
- Morning update (Thursday 12/4)
- Evening update (Wednesday, 12/3)
- Midday update (Tuesday 12/3)
- Evening update (Tuesday 12/2): Some relief
- Midday update (Tuesday 12/2)
- Evening update (Monday 12/1)
- Midday update (Monday 12/1): Bring on the prune juice
-
▼
December
(69)